The cycle of ME/ASD/POTs/Trich

As well as Myalgic Encephalomyelitis (ME/CFS), my daughter also has Postural Orthostatic Tachycardia Syndrome (POTs), Autism (ASD), and Trichotillomania (Trich). Side effects of these are Anxiety and Depression. All of these things feed into each other and create a domino effect.   *Autism causes struggles with sensory overload, from heat, light, sound, touch. It also causes a … More The cycle of ME/ASD/POTs/Trich

How Could I have Missed that She had Autism

How Could I Have Missed she had Autism or Asperger’s? Elizabeth has always struggled with social interactions. She likes her own company and struggled with social norms and expectations with peer groups. Panic attacks before and during school were frequent. She can’t talk on the phone to anyone she does not know, couldn’t order a … More How Could I have Missed that She had Autism

How my Daughters Illness Presented 2018

Diary from the Early Days End of July and through August 2018: Noticed heart racing, getting breathless, often too tired to do usual things, frequently feeling ‘not quite right’. 7th September 2018– went to the gym and became physically exhausted and breathless with a high heart rate just peddling steady on a static bike. Went … More How my Daughters Illness Presented 2018

What is Trichotillomania and how did it present in my daughter?

Trichotillomania Facts Trichotillomania is a hair pulling disorder and is often known as Trich. Trichotillomania is when someone can’t resist the urge to pull out their hair. They may pull out the hair on their scalp, eyelashes, eyebrows, under arms, legs, pubic regions and anywhere hair grows on their bodies. Sufferers have an intense urge … More What is Trichotillomania and how did it present in my daughter?

Did Fluoxetine Cause my Daughters ME?

I believe my daughters Myalgic Encephalomyelitis was triggered by a toxic reaction within her body to Fluoxetine (Prozac) an anti depressant prescribed by Children and Adolescent Mental health Service (CAMHS) for her social anxiety and generalised depression. (later diagnosed with Autism). I also believe it caused her to have Trichotillomania (Obsessive Hair Pulling Disorder), • … More Did Fluoxetine Cause my Daughters ME?

The Journey Begins

These photos show Elizabeth’s healthy look in 2016 and 2017 and how she looked in 2018 with doctors telling us her health problems were all dues to her Social Anxiety and generalised Depression. She actually had a physical/ illness Myalgic Encephalomyelitis.. The truth faced by nearly everyone who presents with ME Symptoms Most doctors don’t … More The Journey Begins