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The cycle of ME/ASD/POTs/Trich

As well as Myalgic Encephalomyelitis (ME/CFS), my daughter also has Postural Orthostatic Tachycardia Syndrome (POTs), Autism (ASD), and Trichotillomania (Trich). Side effects of these are Anxiety and Depression. All of these things feed into each other and create a domino effect.   *Autism causes struggles with sensory overload, from heat, light, sound, touch. It also causes a…

Brain Fog in Myalgic Encephalomyelitis (ME)

No one talks about it. All anyone talks about when you mention Myalgic Encephalomyelitis (ME) is tiredness or fatigue. Part of this is because of the correlation and inter use of the term Chronic Fatigue Syndrome. Another reason why I am very much against the term being used.No one talks about or prepares you for,…

My Daughter with ME and her Pets

Pet Therapy is under rated Elizabeth has always preferred to be around animals than people. She has had pet goldfish, cats, hamsters and guinea pigs but has always wanted a snake. This is where I own up to being terrified of snakes and admit to having the ‘ when you have your own home you…

What is PEM for people with ME?

Post Exertional Malaise (PEM)If you run a marathon, climb a mountain, abseil or go mountain biking you may expect to feel a little bit tired after, but how about expecting to be too exhausted to stand up after cleaning your teeth or getting dressed? To truly meet the criteria to be diagnosed with Myalgic Encephalomyelitis…

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About Me

Hi, I’m Helen and this blog is to share with you my daughter, Elizabeth’s journey with Myalgic Encephalomyelitis (ME)! and PoTS and how she developed Trichotillomania and also was diagnosed with Autism. #AwarenessMatters

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