As well as Myalgic Encephalomyelitis (ME/CFS), my daughter also has Postural Orthostatic Tachycardia Syndrome (POTs), Autism (ASD), and Trichotillomania (Trich). Side effects of these are Anxiety and Depression. All of these things feed into each other and create a domino effect. *Autism causes struggles with sensory overload, from heat, light, sound, touch. It also causes a … More The cycle of ME/ASD/POTs/Trich
No one talks about it. All anyone talks about when you mention Myalgic Encephalomyelitis (ME) is tiredness or fatigue. Part of this is because of the correlation and inter use of the term Chronic Fatigue Syndrome. Another reason why I am very much against the term being used.No one talks about or prepares you for, … More Brain Fog in Myalgic Encephalomyelitis (ME)
Pet Therapy is under rated Elizabeth has always preferred to be around animals than people. She has had pet goldfish, cats, hamsters and guinea pigs but has always wanted a snake. This is where I own up to being terrified of snakes and admit to having the ‘ when you have your own home you … More My Daughter with ME and her Pets
Post Exertional Malaise (PEM) If you run a marathon, climb a mountain, abseil or go mountain biking you may expect to feel a little bit tired after, but how about expecting to be too exhausted to stand up after cleaning your teeth or getting dressed? To truly meet the criteria to be diagnosed with Myalgic … More What is PEM for people with ME?
The most dismissive and discriminatory thing people say when they are talking about Myalgic Encephalomyelitis (ME) is that a sufferer is just tired, TIRED! does not cut it. Imagine you have had a general aesthetic, you are counting down from 10 and when you get to 8 and feel yourself going under and you are … More Having ME is not about being a little bit tired!
Elizabeth’s Autism test result. ( Link to test) https://www.idrlabs.com/autism-spectrum/65-60-60-60-55-85-55-70-90-80/result.php?fbclid=IwAR3ZJBA_UuNDPsFPKywyrUKwrlYs6PTFvMRempLthcV26_9Yldlkw0QMMRk How Could I Have Missed she had Autism or Asperger’s? Elizabeth has always struggled with social interactions. She likes her own company and struggled with social norms and expectations with peer groups. Panic attacks before and during school were frequent. She can’t talk on the phone … More How Could I have Missed that She had Autism
Diary from the Early Days End of July and through August 2018: Noticed heart racing, getting breathless, often too tired to do usual things, frequently feeling ‘not quite right’. 7th September 2018– went to the gym and became physically exhausted and breathless with a high heart rate just peddling steady on a static bike. Went … More How my Daughters Illness Presented 2018
Trichotillomania Facts Trichotillomania is a hair pulling disorder and is often known as Trich. Trichotillomania is when someone can’t resist the urge to pull out their hair. They may pull out the hair on their scalp, eyelashes, eyebrows, under arms, legs, pubic regions and anywhere hair grows on their bodies. Sufferers have an intense urge … More What is Trichotillomania and how did it present in my daughter?
I believe my daughters Myalgic Encephalomyelitis was triggered by a toxic reaction within her body to Fluoxetine (Prozac) an anti depressant prescribed by Children and Adolescent Mental health Service (CAMHS) for her social anxiety and generalised depression. (later diagnosed with Autism). I also believe it caused her to have Trichotillomania (Obsessive Hair Pulling Disorder), • … More Did Fluoxetine Cause my Daughters ME?
These photos show Elizabeth’s healthy look in 2016 and 2017 and how she looked in 2018 with doctors telling us her health problems were all dues to her Social Anxiety and generalised Depression. She actually had a physical/ illness Myalgic Encephalomyelitis.. The truth faced by nearly everyone who presents with ME Symptoms Most doctors don’t … More The Journey Begins
My Daughter and (ME) Myalgic Encephalomyelitis 