The Journey Begins

These photos show Elizabeth’s healthy look in 2016 and 2017 and how she looked in 2018 with doctors telling us her health problems were all dues to her Social Anxiety and generalised Depression. She actually had a physical/ illness Myalgic Encephalomyelitis.

The truth faced by nearly everyone who presents with ME Symptoms

Most doctors don’t understand Myalgic Encephalomyelitis and so after their tests don’t give conclusive results will label the patient as having MUS or medically unexplained symptoms. This is the key that unlocks a Mental health route for a physical / biomedical illness.

When your child starts displaying symptoms of Myalgic Encephalomyelitis the journey the medical profession take you on is into a hell on earth. You and your child will be dismissed, disbelieved, accused of FII and fabricating the illness for attention. Munchausen’s will start being mentioned. You will be told you are an enabler and enjoying he additional caring role having a sick child is giving you.

I knew nothing about Myalgic Encephalomyelitis until my daughter was diagnosed with it. In the 1980’s I’d heard of Yuppy Flu and like others dismissed it as students being lazy, playing sick to get out of school. HOW WRONG WAS I!?!

Taking Elizabeth to our GP was the beginning of a long journey of fob offs, buck passing and dismissal of symptoms. It was a heart-breaking, soul-destroying journey that almost destroyed us both and has left Elizabeth was a huge distrust of medical professionals.

One thought on “The Journey Begins

  1. Welcome to the world of blogging and sharing your stories and experiences into this.
    May your blogging journey go well, as you make us aware of ME.


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