Myalgic Encephalomyelitis or ME is often ‘unhelpfully’ called Chronic Fatigue Syndrome or CFS.
For this Blog Site I will only refer to the illness as Myalgic Encephalomyelitis or ME
ME is a Chronic Illness that affects every cell of the sufferers body. It manifests in symptoms affecting, the brain, the pulmonary, cardiology, digestive, hormonal, reproductive and nervous systems.
There is no medical test to diagnose ME, it is a diagnosis of exclusion and symptoms have to have been present continually for over 6 months for a diagnosis to be affirmed.
This blog will discuss the symptoms my daughter presented with in 2018 when Myalgic Encephalomyelitis and how she was treated by medical and educational professionals in the UK impacted on her life.
We will look at how I think Fluoxetine medication (Prozac triggered her ME), how she developed secondary POTS, Trichotillomania and was diagnosed with Autism. We will explore the concepts of pacing, stimming, masking, CBT/GET and education while chronically ill. We will also examine symptoms, including fatigue and brain fog.
No one talks about it. All anyone talks about when you mention Myalgic Encephalomyelitis (ME) is tiredness or fatigue. Part of this is because of the correlation and inter use of the term Chronic Fatigue Syndrome. Another reason why I am very much against the term being used.No one talks about or prepares you for, … More Brain Fog in Myalgic Encephalomyelitis (ME)
Pet Therapy is under rated Elizabeth has always preferred to be around animals than people. She has had pet goldfish, cats, hamsters and guinea pigs but has always wanted a snake. This is where I own up to being terrified of snakes and admit to having the ‘ when you have your own home you … More My Daughter with ME and her Pets
Post Exertional Malaise (PEM) If you run a marathon, climb a mountain, abseil or go mountain biking you may expect to feel a little bit tired after, but how about expecting to be too exhausted to stand up after cleaning your teeth or getting dressed? To truly meet the criteria to be diagnosed with Myalgic … More What is PEM for people with ME?