What is Myalgic Encephalomyelitis (ME)

Myalgic Encephalomyelitis or ME is often ‘unhelpfully’ called Chronic Fatigue Syndrome or CFS.

For this Blog Site I will only refer to the illness as Myalgic Encephalomyelitis or ME

ME is a Chronic Illness that affects every cell of the sufferers body. It manifests in symptoms affecting, the brain, the pulmonary, cardiology, digestive, hormonal, reproductive and nervous systems.

There is no medical test to diagnose ME, it is a diagnosis of exclusion and symptoms have to have been present continually for over 6 months for a diagnosis to be affirmed.

This blog will discuss the symptoms my daughter presented with in 2018 when Myalgic Encephalomyelitis and how she was treated by medical and educational professionals in the UK impacted on her life.

We will look at how I think Fluoxetine medication (Prozac triggered her ME), how she developed secondary POTS, Trichotillomania and was diagnosed with Autism. We will explore the concepts of pacing, stimming, masking, CBT/GET and education while chronically ill. We will also examine symptoms, including fatigue and brain fog.

The cycle of ME/ASD/POTs/Trich

As well as Myalgic Encephalomyelitis (ME/CFS), my daughter also has Postural Orthostatic Tachycardia Syndrome (POTs), Autism (ASD), and Trichotillomania (Trich). Side effects of these are Anxiety and Depression. All of these things feed into each other and create a domino effect.   *Autism causes struggles with sensory overload, from heat, light, sound, touch. It also causes a…

Brain Fog in Myalgic Encephalomyelitis (ME)

No one talks about it. All anyone talks about when you mention Myalgic Encephalomyelitis (ME) is tiredness or fatigue. Part of this is because of the correlation and inter use of the term Chronic Fatigue Syndrome. Another reason why I am very much against the term being used.No one talks about or prepares you for,…

My Daughter with ME and her Pets

Pet Therapy is under rated Elizabeth has always preferred to be around animals than people. She has had pet goldfish, cats, hamsters and guinea pigs but has always wanted a snake. This is where I own up to being terrified of snakes and admit to having the ‘ when you have your own home you…